The 36-year-old mother explained why she gave her little girl an illegal cannabis oil. She explained that it's in a bid to to control an epileptic seizure that could kill her .
The little girl has Dravet syndrome, a rare genetic form of epilepsy.
She has difficulty swallowing, has autistic traits and requires round-the-clock care, forcing her mum to work full-time as her carer.
The child could suffer a fatal seizure at any time and has to take a range of medication daily.
The mum said: “My daughter was jumping in her sleep and her heart rate was going down.My concern was sudden death, which is linked with epilepsy.
“She was very ill in February. We nearly lost her. We were so lucky. She was in intensive care but recovered quicker than anyone expected. But I was worried about her heart rate slowing down and I wanted to stop her night-time seizures.
“When we got out of hospital I just thought, ‘What am I going to do? She’s jumping in her sleep at night-time and having seizure activity.’”
So She found a Facebook group called Bud Buddies and sourced her own supply of cannabis oil which she received through the post and in person.
One oil contains cannabidiol (CBD), which is derived from cannabis but contains no psychoactive substances.
She has also been giving her an oil containing controversial tetrahydrocannabinol (THC), a psychoactive substance that is illegal to buy or use.
Breaking the Misuse of Drugs Act is a risk shes willing to take because she believes the drops have vastly improved her daughters condition and stopped night-time episodes.
She is continuing to give her daughter CBD oil and intends on getting more THC oil.
She wants to see a change to make cannabis products for medical purposes more easily available.
She said: “I know Im doing the right thing and I know its safer than a lot of the drugs I have in my cupboard.
“I know what my personal experience is and I know Im right.
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